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Now What Can I Eat?

Food Inspo for the Immune Suppressed.

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Now What Can I Eat on…

Some immune friendly reviews, thoughts and incites on:

Cookbooks |Travel Destinations | Restaurants (coming soon) | Product Reviews (coming soon)

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Yesterday I had the honour of judging the #BromptonBakeOff and while obviously I wasn’t going to say no to some delicious cake 🍰 the fact that I was invited is, for me, a much bigger thing. Prior to my transplant I didn’t want to be in, around or even near hospitals 🏥 . They were a place that scared me, were full of unknowns and were somewhere I felt trapped with little power. I felt angry and alone in the situation. While this was no fault of the staff at the amazing hospitals I had the care the reality was I wanted to forget I had CF and everything, including transplant, associated with it. I didn’t want to see support staff, hear about projects or even to talk about it all.⠀⠀⠀⠀⠀⠀⠀⠀⠀ Fast forward a few years and I’ve done a 360 and am actively involved with @rbhcharity and am now a governor at @royalpapworth (which obviously deserves a whole separate post once I’m up to speed...) 🙋🏻‍♀️⠀⠀⠀⠀⠀⠀⠀⠀⠀ I’ve started to realise what support these hospitals can give to patients, family and others if you let them and it’s things like this cake sale, and the funds they raise 💷 , that lets this happen... so, while I still don’t love hospital admissions, and thankfully they are a lot less regular anyway, you can expect to see me enthusiastically getting involved in projects and events like this and more going forward 💜 (oh, and if anyone else wants me to eat cake I’m happy to do that too 🧁)
If you ask my mum I categorically don’t like soup...I spent my childhood insisting on a different meal when soup was on the menu 😬 but I’m trying to be a grown up and actually this one was pretty good:⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Carrot, sweet potato and chilli soup⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🥕🍠🌶⠀⠀⠀⠀⠀⠀⠀⠀⠀ Ingredients⠀⠀⠀⠀⠀⠀⠀⠀⠀ •6/7 large carrots (or equivalent)⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 sweet potato⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 onion⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 red chilli ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 2cm cube of fresh ginger⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 stock cube⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 litre water⠀⠀⠀⠀⠀⠀⠀⠀⠀ •50ml coconut cream⠀⠀⠀⠀⠀⠀⠀⠀⠀ Method⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Chop then ends of the carrots and wash⠀⠀⠀⠀⠀⠀ •Roast in the oven with a little oil, at around 170oC, until you can easily put a fork through the carrots (if you need to do it faster chop them up)⠀⠀⠀⠀⠀⠀⠀⠀⠀ •In the meantime wash the sweet potato and chop into small cubes⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Roughly chop the onion⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Add both to a saucepan with a drizzle of oil on a low heat, with a lid, until soft⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Add one fresh chilli, chopped and the cube of ginger, again chopped⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Dissolve the stock cube in 1 litre of water and add to the pan ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Once the carrots are roasted remove from the oven and add to the saucepan⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Reduce by simmering for 10 minutes⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Blend the mixture until smooth using a soup stick or blender⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Add the coconut cream, stir in and heat •Add a touch more water if required to get the consistency you prefer and more chilli if you want added kick⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Spoon out, eat! 🥣
🧔🏻👩🏻&🐶s Suffolk camper van adventure = Sausage sandwiches, swimming & sunshine is September! ...I might need some field kitchen cooking experience as we had sausage pasta for dinner and then sausage sandwiches for breakfast 🍴🚐 and I’m not sure camper vans will be replacing our normal night away choices that often but we survived and 🧔🏻 even said he might try it again... Hope everyone else had a lovely weekend too ♥️
A recipe for the weekend 🍴 A perfect end of summer pie when in my opinion you want comfort food but maybe aren’t quite ready to crack out the winter recipes yet 🥧⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🍴Herby chicken and bacon filo pie ⠀⠀⠀⠀⠀⠀⠀⠀⠀ (Serves 3/4 with veg)⠀⠀⠀⠀⠀⠀⠀⠀⠀ Ingredients⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 1 onion⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 2 chicken breasts or the equivalent ⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 2 pieces of bacon (cooked)⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 2 cubes of spinach (optional)⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Small glug of white wine⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 200ml chicken stock⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 3 tablespoons creme fresh⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 1 Lemon ⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Big handful of herbs, chopped⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 2 tsp corn flour (optional)⠀⠀⠀⠀⠀⠀⠀⠀⠀ - 5/8 sheets filo pastry ⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Nob of butter, melted⠀⠀⠀⠀⠀⠀⠀⠀⠀ Method⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Turn oven on to 200oC⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Cook 2 rashes of bacon in a medium/large frying pan, set aside⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Dice onion and cook until soft and slightly brown⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Add chicken (if raw chicken cook enough to seal the outsides)⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Add spinach, chicken stock and creme fresh - Add the zest of and a small squeeze of lemon⠀⠀⠀⠀⠀⠀⠀⠀⠀ - In a cup put two tsp of corn flower, mix with a splash of cold water⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Add to the pan and cook out the mix (it will thicken) for 5 minutes⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Turn off the heat and stir through the chopped herbs and season⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Transfer to a baking dish⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Melt the nob of butter⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Brush the individual sheets of filo with butter using a pastry brush, bunch them up and place on top of your pie mix⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Dab any remaining butter on the top⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Cook for 20/25 minutes until the pastry on top is crispy and browned⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Remove from the oven, let cool for 5 minutes⠀⠀⠀⠀⠀⠀⠀⠀⠀ - Serve up with some peas or other green veg
Yesterday we had the pleasure of visiting @thecourtlondon, for drinks, canapés and a Q&A discussion with @asmakhanlondon and @weareprojectzero, hosted by @foodism, as part of #carnabyeats 💙⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💬 A lot of areas were covered, and Asma’s story was fascinating (@darjeelingldn is now firmly on my must visit list) but with a focus on sustainability as key 🔑 to the talk there were a couple of interesting, and easily applied, things I took away:⠀⠀⠀⠀⠀⠀⠀⠀⠀ -> If your in the Carnaby St area and looking for food look for a little #blueturtle 🐢 ...these restaurants have committed to becoming more ocean friendly thanks to the scheme (and if the trial works hopefully it will be rolled out further)⠀⠀⠀⠀⠀⠀⠀⠀⠀ -> If your eating fish 🐟 an app called @seafoodwatch allows you to check fish for their sustainability and suggests possible alternatives if needed so you can easily identify from a menu what’s best to pick⠀⠀⠀⠀⠀⠀⠀⠀⠀ ❓if you have any more handy tips to help pop them below and I will make sure to share ♥️
🚫COMPETITION NOW CLOSED🚫⭐️COMPETITION⭐️⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ Filippo Berio is the olive oil I will always head for in the supermarket, their bottles are a constant on my kitchen surface and it’s a rare meal that doesn’t have at least a glug or two added at some point 🍴.⠀⠀⠀⠀⠀⠀⠀⠀⠀ With over 150 years behind the brand it’s no wonder they are a trusted olive oil brand but I have recently discovered, and also love their pestos. They offer an easy flavour kick in a range of yummy flavours and if your still lacking inspiration they even have a new booklet out full of simple one pot suppers...exactly my type of cooking!⠀⠀⠀⠀⠀⠀⠀⠀⠀ Whether your already a fan or haven’t tried Filippo Berio product before if you want to be in with a chance of winning a selection of @FilippoBerio_uk products to use yourself as well as their handy booklet crammed with some delicious meal ideas?⠀⠀⠀⠀⠀⠀⠀⠀⠀ All be in with a chance you need to do is:⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💛Make sure you’re following @nowwhatcanieat.⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💛Follow @filippoberio_uk⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💛Like this post and comment letting us know who you would invite round for dinner with a tag ⠀⠀⠀⠀⠀⠀⠀⠀⠀ *For extra entries in the random draw please share the post*⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ *Prize - 3 500ml bottles of Olive Oil, 6 pestos, 2 oil sprays, the booklet and some cute mini bottles too⠀⠀⠀⠀⠀⠀⠀⠀⠀ *Competition will close ‪at 11.59pm on the ‬18th of September and the winner, picked using a random generator, announced the next day*⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ *Winners will have 24 hours to provide their details for delivery of the prize*⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ *UK entries only this time I’m afraid!*⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #ad - the team at Filippo Berio kindly gifted me some product and allowed me to run this competition
There’s a new spot on our side of London and if you’re in the area I would suggest it’s well worth a visit... @livrestaurantgroup is just a few minutes walk from Sloan Square and offers exactly what you want from a small independent restaurant in my opinion (except maybe food at all hours but they’re starting with lunch, ensuring they nail that and then introducing supper). We visited at the end of their soft launch week but will definitely be back... Bright and light, with comfortable sofa style window seating and some beautiful blooms on display it’s the ideal location for anything from a catch up with friends 👭 , a meal with the parents 👩🏼‍🦳👨🏼‍🦳 or a working lunch 💼. Completely free of pretension (which in this area isn’t always a given) the staff were really friendly and very happy to cater for my dietary requests and minor amends. The lunch menu itself was a great mix of healthy and a little more filling options, I had a delicious pork sandwich + fries (obvs) and 🧔🏻 who was WFH so could lunch date on this rare occasion had a steak and fries... their small but perfectly formed cocktail list was an added bonus too 🍸 (Meal and a drink kindly #gifted)
So as another #organdonationweek draws to a close I wonder slightly what difference it’s made?⠀⠀⠀⠀⠀⠀⠀⠀⠀ In the world 🌍 I live in the week has been a hive of activity and full of people talking about transplants, encouraging organ donation and trying to raise the profile and understanding around the issue but how far do these messages chime? How many people completely personally unaffected by organ donation listen to awareness weeks? ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I know I am probably guilty of letting other awareness weeks less relevant to me pass by (there are so many it seems and just maybe #nationaldonutweek etc might remove from the importance of others) so cannot expect differently of others or be angry if that is the case.⠀⠀⠀⠀⠀⠀⠀⠀⠀ I don’t mean to be overly negative and this is definitely no criticism of the week or the efforts that do take place.⠀⠀⠀⠀⠀⠀⠀⠀⠀ I hope it might not be the case. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Even if a small % of those unaware were exposed to a story or statistic that meant they registered as a donor because of this week, or any other awareness activity, then it’s a positive move in the right direction. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I hope the takeovers I hosted and the campaigns I supported were a small drop in a much bigger pond (and thank you so much to xxx and xxx for doing them 💕)⠀⠀⠀⠀⠀⠀⠀⠀⠀ I hope one day we won’t need #organdonationweek at all but until then I hope people listen to the stories, share their wishes and potentially save lives and that the current 6000+ people waiting for a transplant, and those who join ‘the list’ in the future, might receive the amazing gift I was lucky enough to ♥️
I challenge you to find an easier pill to swallow 💊 ...⠀⠀⠀⠀⠀⠀⠀⠀⠀ With biscuit week on #gbbo this week it seemed the perfect excuse to break out this cutter & while I admit these ginger biscuits might not be the most multi dimensional option possible they’re a whole lot simpler than most ginger biscuit recipes and pretty delicious...⠀⠀⠀⠀⠀⠀⠀⠀⠀ Easy Ginger Biscuits⠀⠀⠀⠀⠀⠀⠀⠀⠀ Ingredients⠀⠀⠀⠀⠀⠀⠀⠀⠀ •85g soft butter⠀⠀⠀⠀⠀⠀⠀⠀⠀ •100g caster sugar⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 egg⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1 teaspoon ground ginger⠀⠀⠀⠀⠀⠀⠀⠀⠀ •200g plain flour (plus more if needed)⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1/2 teaspoon baking powder⠀⠀⠀⠀⠀⠀⠀⠀⠀ •1/2 teaspoon chopped fresh ginger⠀⠀⠀⠀⠀⠀⠀⠀⠀ Method 👩🏻‍🍳⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Cream the butter and sugar together until pale and then add in the egg. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Add the flour, ground ginger & baking powder to the wet mix and combine gently, adding the chopped ginger right at the end (If you think the finished mixture is too sticky to be rolled out, add a little more flour)⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Remover from the bowl and wrap in clingfilm and rest in the fridge for at least 1 hour.⠀⠀⠀⠀⠀⠀⠀⠀⠀ •When you are ready to make the biscuits, preheat the oven to 180oC⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Sprinkle your rolling surface with flour, place the dough, or part of it, on it and sprinkle a little more flour on top of that. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Roll it out to a thickness of about ½ cm / ¼ inch. ⠀ •Cut into shapes and place the biscuits a little apart on the baking sheets.⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Bake for 8–12 minutes, by which time they will be lightly golden around the edges. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •Cool on a rack ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •When they’re all fully cooled, you can get on with the icing and decorating however you like!
This evening Arun will be doing the last takeover of #organdonationawarenessweek so have a read of below then pop him some questions on the sticker in stories! • Name -Arun Ray • Insta Handle - @docaray • Age - 33 • Location - London/Brighton • Brief background (inc any relevant medical info you would like to share) - I was diagnosed with renal failure in my early 20s. This was initially managed with tablets and keeping healthy. As expected my own kidneys wore out to the point I needed. I received a kidney transplant last year; my Mum was my donor. My page focuses on health and fitness, which hopefully shows the transformational power transplants can have as well as to motivate and inspire others to live healthier lives • Favourite food - Sushi before the transplant. Probably doughnuts and most junk food now (irony not lost)
Tomorrow we will have another #nwcietakeover from Lucia ♥️ so pop her any questions below or head to my stories and add any to the sticker post 👌🏼⠀⠀⠀⠀⠀⠀⠀⠀⠀ Name: Lucia Mee⠀⠀⠀⠀⠀⠀⠀⠀⠀ Insta handle: @lucia.mee⠀⠀⠀⠀⠀⠀⠀⠀⠀ Age: 20⠀⠀⠀⠀⠀⠀⠀⠀⠀ Location: Ballycastle, N.Ireland⠀⠀⠀⠀⠀⠀⠀⠀⠀ Brief Background: Since the age of eight, I have had three liver transplants. The last transplant was in September 2015 so I am coming up to four years next week. My original condition is called Auto Immune Hepatitis. Since my transplants I have had many health struggles both physically and mentally and continue to live a fairly unpredictable life. Despite this, or maybe because of this, I feel so strongly about enjoying life as much as I possibly can. I try my hardest to make the most of life, being as active as possible and grabbing every opportunity I see. I compete as a swimmer in the Transplant Games and have met the most amazing people through my journey.⠀⠀⠀⠀⠀⠀⠀⠀⠀ I now try and use whatever platform I have to raise awareness of Organ Donation and the amazing gift of life I have been given. I am also vocal about mental health and try to use my voice to help end the stigma that surrounds this area.⠀⠀⠀⠀⠀⠀⠀⠀⠀ Favourite Food: Probably pasta ... or mango Any other info: Just to add that I do have steroid induced diabetes – a side effect from one of the medicines I have to take to prevent rejection of the transplant.
I know it’s often easiest to cook the things we know, to churn out the same old favourites with minimal need for effort or thought 💭...I definitely do it, and sometimes there is zero wrong with this but I would love to explore other ideas/food cultures and cuisines a little more than I do right now in my cooking at home 🙋🏻‍♀️! The added concerns around the dietary limitations of being immune suppressed makes this a little more difficult, but definitely not impossible, and while adaptation may come into play a little with a bit of planning that’s fine! 📣 So, recipe recommendations please? Instagram accounts to follow? #cookbooks to look up? I know life is busy but I’m going to try and mix it up a bit too and would love to have some suggestions as to which directions to go in 🔀↕️↖️↔️🔄
As part of #organdonationawarenessweek I wanted to highlight some amazing people who have had other transplants with some #ncwietakeover ‘s. For those who saw them before the formats the same: intro post, stories questions sticker and then the takeover so please get involved, ask questions etc ♥️ First up is@running_therift so here we go: Name: Ellie Lacey Insta handle: @running_therift Age: 33 Location: Cardiff, UK Background: I had a liver transplant just over 2 and a half years ago. It was very unexpected and very urgent and it’s still a mystery why my liver just gave up the ghost one day! Before my transplant I was a super keen runner and I feel incredibly lucky that I’ve been able to get back to running, even representing GB at the World Transplant Games this year🇬🇧! I’ve also been able to have a beautiful baby boy, Otto, who’s now 8 months old and my constant little reminder of how much I have to thank my donor for. Fav food: Pre transplant ice cream was my food of choice is any situation 🤤 now I’m ‘trying’ to stay away from sugar 🙈 it’s probably toast and peanut butter...with banana if I’m feeling fancy. Ellie will he taking over tomorrow evening so pop any questions you have below or via the question sticker on my stories 💕
Two and a half years ago my life was saved thanks to the selfless decision of one individual and his family.⠀⠀⠀⠀⠀⠀⠀⠀⠀ It’s amazing how some things feel like yesterday and some things feel forever ago. I have done so much thanks to him and have so many more plans and things I want to achieve.⠀⠀⠀⠀⠀⠀⠀⠀⠀ Today marks the start of #organdonationawarenessweek and I wanted to start it with a thank you to him. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I hope my story, and others like it including some amazing people doing takeovers on @nowwhatcanieat this week, might encourage those who haven’t to sign up as organ donors. It takes literally 2 minutes but could mean should the worst happen to you up to 9 lives could be saved. Just google Organ Donation UK or the links in my stories to sign up or find out more ♥️
There’s something about making cakes 🎂 for special occasions that I honestly love 💕 and over the last couple of years I’ve slowly become more confident in my skills ... I’m not saying I’m perfect but I definitely want more excuses to hone these skills so shout 📢 if you’ve got any excuses for me👩🏻‍🍳 (and shout out to the friend who entrusted me with this first ever official wedding commission 👰🏼... I hope it lived up to expectation)
What is it about the sun that makes everything taste better?!?⠀⠀⠀⠀⠀⠀⠀⠀⠀ 📸 Parma ham (from a packet, obvs) + pesto roast aubergine 🍆 and salad 🥗⠀⠀⠀⠀⠀⠀⠀⠀⠀ ...not taken today although the sun has decided to shine ☀️
@edfringe you dream... yesterday I got back from a wee visit to Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 which ended in a little trip to the famous Edinburgh Fringe 🎭 with my parents... we saw some brilliant performances over the last couple of days from people including @stiffandkitsch, @georgeegg @whitegirls_lm and @goodbearcomedy (definitely go see any or all of them if they’re ever touring near you), drank wine from a can while watching some pretty epic fireworks and thoroughly indulged on the food front... While I have to, obviously, be a little more careful with my street food selection than others might be thankfully I found everyone at Fringe to be hugely accommodating and their to be a brilliant range of possible options - it sometimes took some tactical omissions from choices, sensible decisions on which vendors to hit up and maybe a few more questions about ingredients or requests around prep but with 2.5 years experience of eating like this behind me I feel I am confident enough to make these judgement calls and can really enjoy lots of foods on offer without worry just like anyone else ♥️
As many, although maybe still not enough of you, are probably aware it’s an exciting time in the world of CF medications. Things are changing and while we might not be their quite yet the prognosis for patients with CF and those born with it in the future is looking better and better.⠀⠀⠀⠀⠀⠀⠀⠀⠀ Post transplant though the reality is most of these medications will have no or limited impact and progress in medications we, and that’s all transplant patients not just those with CF, rely on to survive and thrive aren’t seeing nearly as exciting changes (as far as it seems the community are aware at least - is it just something less talked about or is the research simply not there?!?)⠀⠀⠀⠀⠀⠀⠀⠀⠀ After responding to a question on my thoughts on this a week or so ago it became evident that it was something that lots of post trx patients found hard. Having received a lot of messages it seems that their are some repeated feelings and views which maybe aren’t being discussed openly enough -> •Transplant comes with lots of ‘ifs’, ‘buts’ and ‘maybes’ which can be incredibly scary and while the CF community seem ,at the moment, to have possible exciting break throughs to focus on (not that I am in any way taking away from how hard living with CF is or the daily battles they face) ⠀⠀ •When it comes to transplant meds there are small changes, personalised regimes and close monitoring but also the reality of the ever present possibility of rejection and no golden bullet to stop that in the pipeline. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ •It would be much easier if some meds had less of an impact on us long term or if progress generally and prognosis was less of a guessing game •It would be great to know a little more about what research is happening around anti rejection meds, long term steroid use and the other post transplant realities •As transplant patients lives are thankfully extending we are entering more of a period of unknown. People haven’t been on these meds so long before and so we don’t know exactly what will happen. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Cont ⏬
Happy bank holiday weekend everyone ♥️ - here’s to hoping it’s hot ☀️ and ice cream filled 🍦 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ (📸 a throwback to holiday wandering, sadly)
It’s amazing how in tune these two are, so aware of what’s going on and just exactly what’s needed ♥️.⠀⠀⠀⠀⠀⠀⠀⠀⠀ Milo and Sid have been a huge part of my journey over the last few years. At different times they have provided the comfort or company needed to make the difficult times just a little but more manageable... it might seem ridiculous but these guys have made me smile when I haven’t thought it was possible, motivated me to get out of bed when I haven’t wanted to and quite literally licked my tears away when it’s all been too much to handle.

Please note any views expressed on NowWhatCanIEat pages and social handles are my own. I am not a trained dietician and request not to be considered as such. Should any medical query’s arise from anything discussed in my post please seek the appropriate clinical advice.

In addition, while all recipes are cooked following the guidance I have been given on what it is safe to eat when immune suppressed they have not been checked by a dietician. If the advice you have been given differs from anything here please follow the advice of your team.

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